Friday, October 23, 2009

Hello everyone.

I am really not a very good missionary as far as updating the people who have played a part in my life. Here's the low-down on the situation this evening in Peru.

What I wrote on Facebook:

Most of you know that a year ago Cindy was diagnosed with rheumatoid arthritis. It has been difficult watching her body fink out on her over the past sixteen months, even with the RA meds that she's been taking, she is in near-constant pain. This past week, a different kind of pain started coming off and on and then pretty much on starting last night. This morning she was in tears and in pain no matter what position she was in: standing, sitting, lying down, etc. It's pain deep inside her left leg.

This morning she went with a Peruvian friend to clinic, which is what they call hospital. They wanted to admit her overnight; we were told at first because they thought it was sciatic nerve issue and since she was on so many other meds for the RA, they wanted her in clinic overnight. So she was admitted. AFTER paying a sizable deposit.

Well, after a very frustrating four hours spent with her at clinic, and another spanish-speaking-friend's help, we have discovered that really, they haven't decided what's wrong with her, they need to do an MRI, and the MRI isn't in the clinic (usually in Peru the MRI is not at the actual hospital, it's in an MRI center) and so we have to go to another place to get the MRI and WHY on EARTH they didn't send her this afternoon to get an MRI?????? is beyond me...

Anyway. Her RA doctor was there with the other doctor, and neither one thinks this pain has anything to do with the RA. Like she needs anything else wrong with her body.

PLEASE PRAY for both of us, for the people around us, and for the doctors and medical staff we encounter. I am scared, because not only do I have NO IDEA what's wrong but also because I cannot be effective in advocating for her treatment with my very limited Spanish.

Thank you.

And now how I really feel: absolutely scared out of my wits. and angry. Like cindy doesn't have enough to deal with???? Is her middle name Job??? I'm really not at all confident in this situation- we've never had a problem with the RA doctor at Tezza, but I have little peace with the situation she's in now. I know part of that is just because I'm worried about her and I can't communicate in Medical Spanish. But it's more than that- it's the whole vibe of the place, of the way the nurses reacted or did NOT react.... I understand now why no one ever wants to leave their sick folks alone at a clinic here in Peru... Hearing that "we don't know" what's wrong didn't help either. And now she called to say they can't take her to do the MRI until tomorrow morning, which means another day staying at the hospital, and my cynical side says "yeah, another day in the clinic, more money for them, so of course they won't do it until tomorrow..." She has insurance, but it reimburses after the fact, so it's also the stress of making sure we've always got access to cash for whatever they need to do next...

Until today, our big prayer request would have been "guidance for what on earth we're supposed to do after December" and "miraculous provision of the next-level RA drugs that Cindy needs but that are exorbitantly expensive". And really, those both still apply. The school would love to have us another year (my third grade class wants to have a garage sale to help "pay for me") and we've got nothing job-wise looking good for us in the States. But we can NOT ask our friends and family alone to support us for another year. So, we're unsure of what our next move will be.

Cindy's RA is so severe that all of the drugs available to her now are no longer inhibiting the disease at all. It's barely controlling the pain. But affording the next-level of drugs is WAY beyond our ability, even here in lower-cost Peru. Only God can provide that. We are currently pursing several assistance options through the drug companies and through the Peru ministry of health and hoping God will use that option in a miraculous way.

It's tough living with a loved one in chronic pain. I am trusting God to provide for both of us. (I believe, help my unbelief, ya know?) (I miss my parents and family tonight!)

A happy note: I had to leave school early today, and left a sub with my class. When I told them why I was leaving (Miss Cindy's in the clinica), every one of their faces showed sincere concern and two of them said "we should pray for her". And as I left the room, that's what they were doing. (When I asked who would like to pray, seven hands went up! My class this year has truly been a blessing.

I just talked to Cindy- she told me not to come back, that she's just going to sleep with all the pain killers, and when she heard the tears in my voice actually said to me "Emily, call me if you need anything- God is a loving and faithful God." SHE is comforting ME! So, I suppose I shall go to bed since I've got to be at the clinic in the morning at 8.

Love to you all,
Emily Leinbach (and Cindy)

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